Fibromyalgia is a complex and barely researched illness, so unsponken about that until I was diagnosed, I'd never even thought an illness like it exsisted. For those of you unfamiliar, fibromyalgia is "a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. Researchers believe that fibromyalgia amplifies painful sensations by affecting the way your brain processes pain signals." - Mayo Clinic. To put it simply, everyone has a switch in their body that gets turned on when stimuli tp the body triggers it. This can be used to then send signals to the brain telling it whether you're too hot, too cold, or if you're in pain. Now, fibro patients have had some type of physical or emotional trauma (sometimes both) which flips that switch on all the way, and making it stuck. Therefore, I'm in pain AAAAAAAALL the time.
I was orignally diagnosed in 2010, but in 2013, I was in a motor vehicle accident in which my fibro symptoms worsened to the point of where I could no longer work in the events field. I had no choice but to change and adapt my entire life to better suit my illness. I learnt the hard way what it means to ignore your symptoms and continue on as if your pain doesnt exist. There aren't many fibro sufferers online who post about what it's really like to go through recovery when your outside doesn't always reflect what's going on inside.
So here's the truth in 5 easy little bullet points:
1. I am disabled, and I will have this illness for the rest of my life
2. I am not just a person with a chronic illness, and I will always strive to keep my individuality.
3. Some days, I forget that I even have a disability, and others I can barely leave my bed to get myself some food. I cope by reminding myself that not every day has to be a great day and that no bad day ends without a lesson.
4. My fibro has caused me to address my body and it's needs now more than I'd ever wish, but it's also become this facinating journey into self discovery.
5. There's also no shame in asking for help. I've always learnt to do things for myself, but when you're 5'5" and can't reach the mugs, you can either ask for help and bruise your pride, or try doing something yourself and bruise your whole body.
I am very fortunate to have the support systmes in place that I do, with parents that have educated themselves in fibromyalgia, friends who have stuck by me through it all, and health professionals who actually understand my symptoms andn encourage me througout my road to recovery. And recovery for fibro sufferers doesn't tend to have a deadline, seeing as how it is a chronic and lifelong illness, so having supports who are willing to stick by you whether you fully recover or not is a very hard thing to find. That being said, it doesn't mean that I'm a possitive person. I'm a person who tries to be realistic and sometimes my pessimism comes out (or as my BFF Tisha would say - always). But when you have an illness or disability that makes you want to hide away from the world, you have to cope and get through the day one hour at a time.
Until next time my dears,